Feedom comes at a price and some pay more than others. I proudly support my husband in his decisions to help protect our way of life even though it means long lonely nights of worry and heartbreak.

Wednesday, December 17, 2008

Long needed update

Ok. So a lot has gone on in the last 2 weeks. K at 4 days old had another bili test done cause he looked jaundiced. It was 13.2 so the ped said she wanted it rechecked in a few days. When he was a week old it dropped down to 8.9 and they said he was good. On the 14th I gave him a bath and noticed he looked really yellow. It had just come on in like 1 day, he was a normal pinkish color saturday and then BAM! I figured that since his appt was monday then no need to worry. I mentioned it to the dr and he said that it could be from breast milk, his liver is having a hard time breaking down an enzyme in the milk and that they would test his bili again and go from there. It was 19.8!!! Holy shit! They say to start worrying as it gets near 20! Sp they rushed around and got me approved for Vernon Home Health to come out and monitor his and get me a bili light so that they didn't have to admit him. We went back yesterday and after only being on it since 330 Monday, it had already dropped to 16.2. Good news!! I also starting Monday had to stop giving him breast milk.... So today we go in and after another day and night of being on the bili light, its dropped down to 13 even. We're heading in the right direction except he's lost an ounce because he wont take the formula. It takes me forever just to get 2 oz down him. He told me today to go ahead and give him breast milk again since hes not eating.
Well I thought that we were out of the woods yesterday with the level going down but nope. My son is severely anemic. They did a CBC and another test (it escaped my mind what it is right now due to lack of sleep) and his red blood cells are busting open and spilling bili into his blood. So, right now he said if he doesn't get jandiced again after the breast milk while still being on the bili light then its his anemia and his livers ability to deal with it. I have to take him to ldpr on Friday after I pick my mom up from the airport to get another CBC done to check his red blood cell levels, another bili and he wants to run some more tests but he didn't tell me what he wanted to do cause he said he has it in his head what he wants to test for but might change it later.
Also, he detected a heart murmor but he said that since he hasn't heard it before the other 2 days and no one else heard it the past 2 weeks that it could be nothing and only caused from the jaundice and all. He wants the chardiologist to check him out just to be on the safe side though.
My poor kid!!! I dont know what is going on with him!
Last night was such a bad night cause he was so irritated from being on the bili pad. He wont sleep unless he's in his glider and last night, he'd only sleep maybe 30 min before waking up screaming, Picking him up to console him didn't work to well cause he was still cranky. He slept at the drs office today since he could get comfy without that stiff pad behind his back. That and I think because I could actually bundle him up and cuddle with him.

1 comments:

Alexxxxxx{andra} said...

OMG! I severely hope that the heart murmor (Sp) turns out to be nothing serious and the anemia is easily taken care of. That is a really rough road your family is on right now in addition to adjusting to two kids much less a newborn. I will keep you guys in my prayers! Hang in there Jess!