So now that things have FINALLY settled down I figured I would update.
So Firday we went back so that he could have his CBC and bili level checked again and well, we never left. We ended up being rushed to Rapieds Women and Childrens because his hemacrit level was down so low that he needed a blood transfusion. We got there and they monitored him, redid his iv and took more blood from him. They cross typed his blood and called the blood bank. About 3 am the nurse(who I absolutely loved!!!) told me that they saw that he had an antigen on his blood and wanted to know if I had rogham and all that cause they were tryin to figure out i maybe it was from the rogham or actually on his blood.
We stayed there til Monday late afternoon. He never got the transfusion cause his levels came up slightly. The LPN for the intensivist said that even though it wasnt a significant rise, she felt better about where it was because there were no immature cells. Monday the intensivist came in and said that we could either go home and be monitored here and come back and do the transfusion if needed or we could do the transfusion that day and go home xmas eve. Wes and I decided to wait and see. I greatly questioned myself about this until I got his test results back on xmas eve when we went for a level check. his hemicrit went from 21.7 to 24!!! His reticulate count went from 14 to 12.6 which is good because it shows his bone marrow isnt having to work so hard to produce more red blood cells.
we are just waiting on all the lab results for the tests they did that had to be sent out to know whether or not hes got some disorder that causes some of his red blood cells to be mishapen and fragile which causes them to bust too eaily when they go through the vessels and capilaries. They started him on iron and polyviciol which is supposed to help. his bili level is back to normal and OMG I didnt realize how yellow he really was til he got a normal color to him.
His jaundice was caused by the anemia. When your blood cells die, it causes them to spill biliruben into the blood stream which your liver filters out. His liver couldnt keep up with the amount of bili spilling into his system.
We go back in about 2 weeks for another level check and hopefully its still good. I feel so bad for how many times hes been poked at. They have used every available vein in his body and he is all bruised up. Hes been super clingy and wanting to be with me all the time and that I dont mind lol. He gets kinda irritable when you touch his arm and legs but thats understandable.
Im happy that we were able to be home for xmas. Those 3 days of going back and forth from Alex to home were hell. Im only happy my mom was here to be with Ashelynn.
Feedom comes at a price and some pay more than others. I proudly support my husband in his decisions to help protect our way of life even though it means long lonely nights of worry and heartbreak.
Friday, December 26, 2008
Wednesday, December 17, 2008
Long needed update
Ok. So a lot has gone on in the last 2 weeks. K at 4 days old had another bili test done cause he looked jaundiced. It was 13.2 so the ped said she wanted it rechecked in a few days. When he was a week old it dropped down to 8.9 and they said he was good. On the 14th I gave him a bath and noticed he looked really yellow. It had just come on in like 1 day, he was a normal pinkish color saturday and then BAM! I figured that since his appt was monday then no need to worry. I mentioned it to the dr and he said that it could be from breast milk, his liver is having a hard time breaking down an enzyme in the milk and that they would test his bili again and go from there. It was 19.8!!! Holy shit! They say to start worrying as it gets near 20! Sp they rushed around and got me approved for Vernon Home Health to come out and monitor his and get me a bili light so that they didn't have to admit him. We went back yesterday and after only being on it since 330 Monday, it had already dropped to 16.2. Good news!! I also starting Monday had to stop giving him breast milk.... So today we go in and after another day and night of being on the bili light, its dropped down to 13 even. We're heading in the right direction except he's lost an ounce because he wont take the formula. It takes me forever just to get 2 oz down him. He told me today to go ahead and give him breast milk again since hes not eating.
Well I thought that we were out of the woods yesterday with the level going down but nope. My son is severely anemic. They did a CBC and another test (it escaped my mind what it is right now due to lack of sleep) and his red blood cells are busting open and spilling bili into his blood. So, right now he said if he doesn't get jandiced again after the breast milk while still being on the bili light then its his anemia and his livers ability to deal with it. I have to take him to ldpr on Friday after I pick my mom up from the airport to get another CBC done to check his red blood cell levels, another bili and he wants to run some more tests but he didn't tell me what he wanted to do cause he said he has it in his head what he wants to test for but might change it later.
Also, he detected a heart murmor but he said that since he hasn't heard it before the other 2 days and no one else heard it the past 2 weeks that it could be nothing and only caused from the jaundice and all. He wants the chardiologist to check him out just to be on the safe side though.
My poor kid!!! I dont know what is going on with him!
Last night was such a bad night cause he was so irritated from being on the bili pad. He wont sleep unless he's in his glider and last night, he'd only sleep maybe 30 min before waking up screaming, Picking him up to console him didn't work to well cause he was still cranky. He slept at the drs office today since he could get comfy without that stiff pad behind his back. That and I think because I could actually bundle him up and cuddle with him.
Well I thought that we were out of the woods yesterday with the level going down but nope. My son is severely anemic. They did a CBC and another test (it escaped my mind what it is right now due to lack of sleep) and his red blood cells are busting open and spilling bili into his blood. So, right now he said if he doesn't get jandiced again after the breast milk while still being on the bili light then its his anemia and his livers ability to deal with it. I have to take him to ldpr on Friday after I pick my mom up from the airport to get another CBC done to check his red blood cell levels, another bili and he wants to run some more tests but he didn't tell me what he wanted to do cause he said he has it in his head what he wants to test for but might change it later.
Also, he detected a heart murmor but he said that since he hasn't heard it before the other 2 days and no one else heard it the past 2 weeks that it could be nothing and only caused from the jaundice and all. He wants the chardiologist to check him out just to be on the safe side though.
My poor kid!!! I dont know what is going on with him!
Last night was such a bad night cause he was so irritated from being on the bili pad. He wont sleep unless he's in his glider and last night, he'd only sleep maybe 30 min before waking up screaming, Picking him up to console him didn't work to well cause he was still cranky. He slept at the drs office today since he could get comfy without that stiff pad behind his back. That and I think because I could actually bundle him up and cuddle with him.
Monday, December 8, 2008
The end is here!
Ok so, just a quick update while i can. Baby came at 36w6d(my count) 35 weeks to the day the drs count. Almost full term, still considered preemie (not sure why). He was 6lbs 9 oz and 19 inches long. A BIG difference from Ashes 33-34 weeks and 4 lbs 4 oz and 17 inches lol. He is such a miracle and wonder baby. He sleeps all night, only wakes up maybe once.
So heres my little birth story for anyone interested... I think Alex, you are the only one who reads this still lol. So i went in Friday, Nov 28 because I had been having some major contractions and cramps all day. My contractions went away and I decided to take a shower. Well, i felt loads better while I was in the shower, but the act of walking from the bathroom to the livingroom I got some really bad cramps that just didnt feel like they were going away. I called Wes to tell him he needed to come home cause I needed to go to L&D. He came home to watch Ashes and I went to L&D. Come to find out I was having contractions every 2 min!!! They weren't enough to change me (yet). He told me that since I was only 34w5d (36w4d my count) he was going to stop them!!!! I couldn't believe he was telling me this!!! My High risk dr told me at 34 weeks he would just give me something to ease the pain and help me relax but not stop them and here this on call dr was telling me he was gonna stop them!!! I was to tired and in too much pain to argue with him and ask for my high risk ob to come in to look at me that i just agreed. Normally when I get terbutaline, they give me anywhere from .50-.75 ml and I have never hd a reaction to it other than whats normal. He gave me .25 ml and I had the worst reaction to it. My heartrate went from 98 to 145 in less then 2 min when normally its a gradual rise as the medicine goes threw the system, my BP jumped up to 139/95 which is bad, I had to be put on an O2 mask cause I couldnt breath and it made the contractions worse. Since i cant have anything else cause of my asthma, he decided to over hydrate me to slow down my contractions. Well after 2 hours of that he discharged me. He told me i was to "sit my ass on the couch and not do anything until monday" yes, he said ass lol.
So Saturday rolls around and after sitting there for half a day with no relief, I decided it was pointless because even getting up to go to the bathroom made them extremely painful and worse. I decided that A and I were gonna go to Subway to get dinner for all of us. We ate and then L told me he was gonna go to work and since he was gonna be in the box, that if i needed to get ahold of him, call the company and they would get ahold of him and he would rush back. (he was gonna be 45 min away for like 9 days) He left at about 900 pm but since they werent doing anything, his plt sgt said he could just come home, no sense in him sittin at the company when he could be home with me. He got home about 930 and we started timing my contractions. By the end of "Charlie Wilsons War" They were 13-17 min apart with a few that were 3-5 min. We went to bed around 11 and before we went to bed he asked me if i was sure i didnt want to go back to L&D to get checked out and monitored. I told him no since the only thing they could do for me was monitor me and hook me up to another iv and i would rather try and get comfy in my own bed and get some sleep then be there. I fell asleep right away and woke up at 0100 with the worst contraction I had ever had, so bad it was in my back with the majority of the pain in my pubic bone. Now, I had had a few times where I had peed myself or almost peed myself during contrations so I thought that I was about to pee on myself so as I was saying oh shit from the pain and trying to get out of bed, I took 2 steps (which brought me to the bathroom) and as soon as my feet hit the tile my water broke. I sat down and told wes he needed to call l&d and tell them we were coming cause my water broke. It was so funny cause after he called them and was trying to get some of the last min things in my bag, he asked me "are you sure it broke and you didnt pee yourself?" I looked at him, looked down right as I had a little gush and it was leaking on the floor and was like, nope, im peeing myself, I have an extremely large bladder that lets me hold gallons of water lol.
So we got there about 130 and they got me hooked up, looked at, I was 2 cm and 90% by then, got me all preped to go get my section and then the dr came in. he just laughed at me when I said "I know i was supposed to wait til monday but hey". The contractions were nothing like they were with A after my water broke. I was able to laugh, joke and talk to everyone. I was trying to keep the mood light for my hubby who although will never admit it, looked like a deer caught in the head lights lol. The dr explained all the risks with him being early and so on. they took me back to the section room, gave me my spinal and at 307 am Mr. K made his entrance into this world. He wasn't breathing at first but still managed to have apgars of 6,7,9 which are good. They put him under an O2 tent after I got to see him and by the time the ped got there he was fine.
We got to come home on Tuesday at noon and he has been an absolute joy. he's only had one bad night but all it took to cure it was lettin him sleep on me. I think about how long it took to be able to get pregnant with him and all that I went threw with my labor and I am soo thankful to have him. Words can not even explain.
So heres my little birth story for anyone interested... I think Alex, you are the only one who reads this still lol. So i went in Friday, Nov 28 because I had been having some major contractions and cramps all day. My contractions went away and I decided to take a shower. Well, i felt loads better while I was in the shower, but the act of walking from the bathroom to the livingroom I got some really bad cramps that just didnt feel like they were going away. I called Wes to tell him he needed to come home cause I needed to go to L&D. He came home to watch Ashes and I went to L&D. Come to find out I was having contractions every 2 min!!! They weren't enough to change me (yet). He told me that since I was only 34w5d (36w4d my count) he was going to stop them!!!! I couldn't believe he was telling me this!!! My High risk dr told me at 34 weeks he would just give me something to ease the pain and help me relax but not stop them and here this on call dr was telling me he was gonna stop them!!! I was to tired and in too much pain to argue with him and ask for my high risk ob to come in to look at me that i just agreed. Normally when I get terbutaline, they give me anywhere from .50-.75 ml and I have never hd a reaction to it other than whats normal. He gave me .25 ml and I had the worst reaction to it. My heartrate went from 98 to 145 in less then 2 min when normally its a gradual rise as the medicine goes threw the system, my BP jumped up to 139/95 which is bad, I had to be put on an O2 mask cause I couldnt breath and it made the contractions worse. Since i cant have anything else cause of my asthma, he decided to over hydrate me to slow down my contractions. Well after 2 hours of that he discharged me. He told me i was to "sit my ass on the couch and not do anything until monday" yes, he said ass lol.
So Saturday rolls around and after sitting there for half a day with no relief, I decided it was pointless because even getting up to go to the bathroom made them extremely painful and worse. I decided that A and I were gonna go to Subway to get dinner for all of us. We ate and then L told me he was gonna go to work and since he was gonna be in the box, that if i needed to get ahold of him, call the company and they would get ahold of him and he would rush back. (he was gonna be 45 min away for like 9 days) He left at about 900 pm but since they werent doing anything, his plt sgt said he could just come home, no sense in him sittin at the company when he could be home with me. He got home about 930 and we started timing my contractions. By the end of "Charlie Wilsons War" They were 13-17 min apart with a few that were 3-5 min. We went to bed around 11 and before we went to bed he asked me if i was sure i didnt want to go back to L&D to get checked out and monitored. I told him no since the only thing they could do for me was monitor me and hook me up to another iv and i would rather try and get comfy in my own bed and get some sleep then be there. I fell asleep right away and woke up at 0100 with the worst contraction I had ever had, so bad it was in my back with the majority of the pain in my pubic bone. Now, I had had a few times where I had peed myself or almost peed myself during contrations so I thought that I was about to pee on myself so as I was saying oh shit from the pain and trying to get out of bed, I took 2 steps (which brought me to the bathroom) and as soon as my feet hit the tile my water broke. I sat down and told wes he needed to call l&d and tell them we were coming cause my water broke. It was so funny cause after he called them and was trying to get some of the last min things in my bag, he asked me "are you sure it broke and you didnt pee yourself?" I looked at him, looked down right as I had a little gush and it was leaking on the floor and was like, nope, im peeing myself, I have an extremely large bladder that lets me hold gallons of water lol.
So we got there about 130 and they got me hooked up, looked at, I was 2 cm and 90% by then, got me all preped to go get my section and then the dr came in. he just laughed at me when I said "I know i was supposed to wait til monday but hey". The contractions were nothing like they were with A after my water broke. I was able to laugh, joke and talk to everyone. I was trying to keep the mood light for my hubby who although will never admit it, looked like a deer caught in the head lights lol. The dr explained all the risks with him being early and so on. they took me back to the section room, gave me my spinal and at 307 am Mr. K made his entrance into this world. He wasn't breathing at first but still managed to have apgars of 6,7,9 which are good. They put him under an O2 tent after I got to see him and by the time the ped got there he was fine.
We got to come home on Tuesday at noon and he has been an absolute joy. he's only had one bad night but all it took to cure it was lettin him sleep on me. I think about how long it took to be able to get pregnant with him and all that I went threw with my labor and I am soo thankful to have him. Words can not even explain.
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